TeamCdLS to Run the Chicago Marathon, Oct. 22, 2006
October 10, 2006 at 9:33 am | In Cornelia deLange Syndrome | 7 CommentsTeamCdLS will once again run the Chicago Marathon to raise awareness of Cornelia deLange Syndrome and raise money to support the Cornelia deLange Syndrome Foundation. This year I am captain of our largest team of runners yet…15! We’re two weeks away!
If you’d like to help our cause click here:
15 Years Later…
October 10, 2006 at 8:59 am | In Cornelia deLange Syndrome, Uncategorized | Leave a CommentI wish there had been “blogs” when you were first born. There’s been so much information to record, which I never did. Now it’s a jumble of hazy memories with lots of unsure dates. I thought I’d remember all of your “firsts”, your hospitalization dates, your surgeries and illnesses. So we’ll start now which will help me keep things straight and maybe along the way we’ll help someone else who is starting their journey with CdLS.
Hello world!
October 10, 2006 at 8:48 am | In Cornelia deLange Syndrome, Uncategorized | 1 CommentWill’s Way…a way for me to keep track of happenings in Will’s life. A way for us to reach out to others who are searching for information about Cornelia deLange Syndrome. A way for me to keep in touch with my friends who are living life with Cornelia deLange Syndrome.
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