Will’s Way, Life with Cornelia deLange Syndrome

I wish there had been “blogs” when you were first born.  There’s been so much information to record, which I never did.  Now it’s a jumble of hazy memories with lots of unsure dates.  I thought I’d remember all of your “firsts”, your hospitalization dates, your surgeries and illnesses.  So we’ll start now which will help me keep things straight and maybe along the way we’ll  help someone else who is starting their journey with CdLS.