Will’s Way, Life with Cornelia deLange Syndrome

Wow, What a powerful weekend.  It was such an amazing experience to be joined by this large group of people, all working for the same cause.  My life has been enriched having spent time with this group.  They are all caring, supportive and so generous with their time and energy.

 All 15 runners completed the marathon and the team has raised nearly $30,000 for the Cornelia deLange Syndrome Foundation.  Outstanding!

 My personal marathon experience was amazing.  I was plagued by a nagging injury through the training and had a bad flare up 2 weeks before the marathon.  I thought for sure I would get about 6 miles and have to stop.  I had lots of knee voo doo the week before,  a cortisone shot, and lots of people sending vibes or praying for me.  I also had two guys on the team who ran with me step for step for most of the marathon which gave me such strength and confidence.  Lastly, my thoughts were with Mikey and his family that day.  Knowing the struggle and pain he was enduring.  I thought of him each time I thought I was getting too tired. 

 So all of this powered me through 26.2 miles.  I was never so happy to see a finish line as I was this one.  I really felt the need to finish.  To do it for Will, Mikey, Lisa and all of our kids with CdLS.  I’m so glad I could!

 Thanks to all the great people on the team.  Thanks to our supporters!

 I’ll try to add some pictures here.