Will’s Way, Life with Cornelia deLange Syndrome

The state approached us with a project they have in mind for you:  the creation of a residential home for individuals who will soon be aging out of the school system.  Nancy Weber immediately thought of you, along with Austin and Robert, to fill this new home.  The project from first meeting to move in day could take 2 or more years. 

 Dad and I feel the timing will be perfect.  It’s the natural age you would have moved out had you not been born with a syndrome.  You will be ready to make your life your own and to have time away from us.

It will be hard to let go.  Who will love you as much as us?  But in the long run it will be best for you.  Some day we won’t be here to care for you, you need to have your own life established without us.

 We will make sure it is near perfect for you, and that you will be extremely well cared for and most importantly, happy.