Sweet Sixteen

October 23, 2007 at 6:06 pm | In Cornelia deLange Syndrome |

happybirthdaytoyou22.jpgYour sixteenth birthday has come and gone.  I was prepared for a depression or sadness to hit…but it didn’t.  You were so happy on the day of your family party…enjoying every bite of bread dip, each present and TWO versions of Happy Birthday to You!

So, you are not driving, you are not going out on dates, you aren’t studying for your psat’s, playing football, going to the Homecoming dance…but you are happy.  Mostly.  On a day to day basis you have simple pleasures to keep you happy; playing the piano, being pushed on the swing, orbiting through the house, going for a ride in the car.  You are safe and within sight and I don’t have to worry about you getting hit by a car or getting your heart broken by a dumb girl.  :)

 Medically you need a tune up.  We’re trying to arrange a multi-specialist visit in Boston to take care of ears, teeth and esophagus.  It’s proving to be challenging.  In the meantime we’ll try to keep you as comfortable as we can.

4 Comments »

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  1. Happy 16th Birthday Will!! Wow Beth, were does the time go? What a great picture of Will…love the big smile :-) I love what you said, it’s so true. I’ve noticed as Jess gets older I really don’t dwell as much on what she’s “not” doing…it’s enough that she is safe and well and happy.

    Comment by Sandi — October 29, 2007 #

  2. What a beautiful smile! Happy Birthday, Will! I bet my little guy will be as big as you in the blink of an eye. I’m glad it was a good day.

    Comment by Karen — November 7, 2007 #

  3. Thanks for the birthday wishes!

    It seemed like Will was tiny forever and then overnight was this big kid! :)

    I miss his tiny days.

    Comment by Beth — November 7, 2007 #

  4. Happy Birthday Will!! (a little belated… ;)
    I love the picture, he is the perfect image of happiness :D
    As for your thoughts Beth, thank you for your openness, even though Natalia is only 14 months those are things I have thought about.

    Hope it’s ok if I add you to my blogroll…

    Comment by Sonia — November 8, 2007 #

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