http://bethsmiz.wordpress.com/2008/01/05/finally/ A site to share information about Cornelia deLange Syndrome Fri, 06 Mar 2009 05:00:25 +0000 http://wordpress.com/ hourly 1 http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-661 pjpandbp Tue, 15 Jul 2008 22:00:18 +0000 http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-661 Hi Beth, Sounds like Will was having a tough time. How frustrating it must have been trying to get help for him. How is he doing now? Hi Beth,
Sounds like Will was having a tough time. How frustrating it must have been trying to get help for him. How is he doing now?

]]> http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-653 Beth Mon, 07 Jan 2008 12:15:32 +0000 http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-653 Will is non verbal but speaks volumes when he is unhappy. He will act agitated, pacing very fast and stomping his feet. He will become self abusive with head banging and hand biting. He will make sounds like he is in pain. Won't attend to toys etc as usual. Just overall quite grumpy. When he is feeling good everything changes. He plays, makes happy sounds,explores but doesn't stomp etc. Will is non verbal but speaks volumes when he is unhappy. He will act agitated, pacing very fast and stomping his feet. He will become self abusive with head banging and hand biting. He will make sounds like he is in pain. Won’t attend to toys etc as usual. Just overall quite grumpy. When he is feeling good everything changes. He plays, makes happy sounds,explores but doesn’t stomp etc.

]]> http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-652 Karen Mon, 07 Jan 2008 03:19:16 +0000 http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-652 Wow, what a big guy Will is! I am glad you were able to get an explanation for some of his pain. I was just wondering - how did you know he was having pain? That is one thing I worry about alot with Ben since he may never be able to verbalize pain to us. Wow, what a big guy Will is! I am glad you were able to get an explanation for some of his pain. I was just wondering – how did you know he was having pain? That is one thing I worry about alot with Ben since he may never be able to verbalize pain to us.

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