Comments for Will's Way, Life with Cornelia deLange Syndrome http://bethsmiz.wordpress.com A site to share information about Cornelia deLange Syndrome Fri, 04 Jul 2008 02:43:52 +0000 http://wordpress.org/?v=MU Comment on Finally by Beth http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-653 Beth Mon, 07 Jan 2008 12:15:32 +0000 http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-653 Will is non verbal but speaks volumes when he is unhappy. He will act agitated, pacing very fast and stomping his feet. He will become self abusive with head banging and hand biting. He will make sounds like he is in pain. Won't attend to toys etc as usual. Just overall quite grumpy. When he is feeling good everything changes. He plays, makes happy sounds,explores but doesn't stomp etc. Will is non verbal but speaks volumes when he is unhappy. He will act agitated, pacing very fast and stomping his feet. He will become self abusive with head banging and hand biting. He will make sounds like he is in pain. Won’t attend to toys etc as usual. Just overall quite grumpy. When he is feeling good everything changes. He plays, makes happy sounds,explores but doesn’t stomp etc.

]]> Comment on Finally by Karen http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-652 Karen Mon, 07 Jan 2008 03:19:16 +0000 http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-652 Wow, what a big guy Will is! I am glad you were able to get an explanation for some of his pain. I was just wondering - how did you know he was having pain? That is one thing I worry about alot with Ben since he may never be able to verbalize pain to us. Wow, what a big guy Will is! I am glad you were able to get an explanation for some of his pain. I was just wondering - how did you know he was having pain? That is one thing I worry about alot with Ben since he may never be able to verbalize pain to us.

]]> Comment on Sweet Sixteen by Sonia http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-575 Sonia Thu, 08 Nov 2007 02:06:28 +0000 http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-575 Happy Birthday Will!! (a little belated...) I love the picture, he is the perfect image of happiness :D As for your thoughts Beth, thank you for your openness, even though Natalia is only 14 months those are things I have thought about. Hope it's ok if I add you to my blogroll... Happy Birthday Will!! (a little belated… ;)
I love the picture, he is the perfect image of happiness :D
As for your thoughts Beth, thank you for your openness, even though Natalia is only 14 months those are things I have thought about.

Hope it’s ok if I add you to my blogroll…

]]> Comment on Sweet Sixteen by Beth http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-572 Beth Wed, 07 Nov 2007 10:46:40 +0000 http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-572 Thanks for the birthday wishes! It seemed like Will was tiny forever and then overnight was this big kid! :) I miss his tiny days. Thanks for the birthday wishes!

It seemed like Will was tiny forever and then overnight was this big kid! :)

I miss his tiny days.

]]> Comment on Sweet Sixteen by Karen http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-571 Karen Wed, 07 Nov 2007 03:41:16 +0000 http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-571 What a beautiful smile! Happy Birthday, Will! I bet my little guy will be as big as you in the blink of an eye. I'm glad it was a good day. What a beautiful smile! Happy Birthday, Will! I bet my little guy will be as big as you in the blink of an eye. I’m glad it was a good day.

]]> Comment on Sweet Sixteen by Sandi http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-548 Sandi Mon, 29 Oct 2007 02:49:30 +0000 http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-548 Happy 16th Birthday Will!! Wow Beth, were does the time go? What a great picture of Will...love the big smile :-) I love what you said, it's so true. I've noticed as Jess gets older I really don't dwell as much on what she's "not" doing...it's enough that she is safe and well and happy. Happy 16th Birthday Will!! Wow Beth, were does the time go? What a great picture of Will…love the big smile :-) I love what you said, it’s so true. I’ve noticed as Jess gets older I really don’t dwell as much on what she’s “not” doing…it’s enough that she is safe and well and happy.

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]]> Comment on Family Photo by Sandi http://bethsmiz.wordpress.com/2007/01/14/family-photo/#comment-79 Sandi Tue, 06 Feb 2007 12:34:59 +0000 http://bethsmiz.wordpress.com/2007/01/14/family-photo/#comment-79 Love the family photo Beth! Your girls are just beautiful and Will is a handsome young man! :-) Love the family photo Beth! Your girls are just beautiful and Will is a handsome young man! :-)

]]> Comment on Family Photo by kfb1 http://bethsmiz.wordpress.com/2007/01/14/family-photo/#comment-65 kfb1 Wed, 24 Jan 2007 04:23:05 +0000 http://bethsmiz.wordpress.com/2007/01/14/family-photo/#comment-65 You have a beautiful family, Beth! - Karen. You have a beautiful family, Beth!
- Karen.

]]> Comment on New Year off to a good start… by kfb1 http://bethsmiz.wordpress.com/2007/01/06/new-year-off-to-a-good-start/#comment-55 kfb1 Fri, 12 Jan 2007 00:23:47 +0000 http://bethsmiz.wordpress.com/2007/01/06/new-year-off-to-a-good-start/#comment-55 Glad to hear that Will is finally feeling better! - Karen. Glad to hear that Will is finally feeling better!
- Karen.

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