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	<title>Comments for Will's Way, Life with Cornelia deLange Syndrome</title>
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	<link>http://bethsmiz.wordpress.com</link>
	<description>A site to share information about Cornelia deLange Syndrome</description>
	<lastBuildDate>Fri, 06 Mar 2009 05:00:25 +0000</lastBuildDate>
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		<title>Comment on TeamCdLS to Run the Chicago Marathon, Oct. 22, 2006 by Hero</title>
		<link>http://bethsmiz.wordpress.com/2006/10/10/teamcdls-to-run-the-chicago-marathon-oct-22-2006/#comment-666</link>
		<dc:creator>Hero</dc:creator>
		<pubDate>Fri, 06 Mar 2009 05:00:25 +0000</pubDate>
		<guid isPermaLink="false">http://bethsmiz.wordpress.com/2006/10/10/teamcdls-to-run-the-chicago-marathon-oct-22-2006/#comment-666</guid>
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		<title>Comment on Finally by pjpandbp</title>
		<link>http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-661</link>
		<dc:creator>pjpandbp</dc:creator>
		<pubDate>Tue, 15 Jul 2008 22:00:18 +0000</pubDate>
		<guid isPermaLink="false">http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-661</guid>
		<description>Hi Beth,
Sounds like Will was having a tough time.  How frustrating it must have been trying to get help for him.  How is he doing now?</description>
		<content:encoded><![CDATA[<p>Hi Beth,<br />
Sounds like Will was having a tough time.  How frustrating it must have been trying to get help for him.  How is he doing now?</p>
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		<title>Comment on Finally by Beth</title>
		<link>http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-653</link>
		<dc:creator>Beth</dc:creator>
		<pubDate>Mon, 07 Jan 2008 12:15:32 +0000</pubDate>
		<guid isPermaLink="false">http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-653</guid>
		<description>Will is non verbal but speaks volumes when he is unhappy.  He will act agitated, pacing very fast and stomping his feet.  He will become self abusive with head banging and hand biting.  He will make sounds like he is in pain.  Won&#039;t attend to toys etc as usual.  Just overall quite grumpy.  When he is feeling good everything changes.  He plays, makes happy sounds,explores but doesn&#039;t stomp etc.</description>
		<content:encoded><![CDATA[<p>Will is non verbal but speaks volumes when he is unhappy.  He will act agitated, pacing very fast and stomping his feet.  He will become self abusive with head banging and hand biting.  He will make sounds like he is in pain.  Won&#8217;t attend to toys etc as usual.  Just overall quite grumpy.  When he is feeling good everything changes.  He plays, makes happy sounds,explores but doesn&#8217;t stomp etc.</p>
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		<title>Comment on Finally by Karen</title>
		<link>http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-652</link>
		<dc:creator>Karen</dc:creator>
		<pubDate>Mon, 07 Jan 2008 03:19:16 +0000</pubDate>
		<guid isPermaLink="false">http://bethsmiz.wordpress.com/2008/01/05/finally/#comment-652</guid>
		<description>Wow, what a big guy Will is!  I am glad you were able to get an explanation for some of his pain.  I was just wondering - how did you know he was having pain?  That is one thing I worry about alot with Ben since he may never be able to verbalize pain to us.</description>
		<content:encoded><![CDATA[<p>Wow, what a big guy Will is!  I am glad you were able to get an explanation for some of his pain.  I was just wondering &#8211; how did you know he was having pain?  That is one thing I worry about alot with Ben since he may never be able to verbalize pain to us.</p>
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		<title>Comment on Sweet Sixteen by Sonia</title>
		<link>http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-575</link>
		<dc:creator>Sonia</dc:creator>
		<pubDate>Thu, 08 Nov 2007 02:06:28 +0000</pubDate>
		<guid isPermaLink="false">http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-575</guid>
		<description>Happy Birthday Will!! (a little belated...)
I love the picture, he is the perfect image of happiness :D
As for your thoughts Beth, thank you for your openness, even though Natalia is only 14 months those are things I have thought about. 

Hope it&#039;s ok if I add you to my blogroll...</description>
		<content:encoded><![CDATA[<p>Happy Birthday Will!! (a little belated&#8230;)<br />
I love the picture, he is the perfect image of happiness <img src='http://s.wordpress.com/wp-includes/images/smilies/icon_biggrin.gif' alt=':D' class='wp-smiley' /><br />
As for your thoughts Beth, thank you for your openness, even though Natalia is only 14 months those are things I have thought about. </p>
<p>Hope it&#8217;s ok if I add you to my blogroll&#8230;</p>
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		<title>Comment on Sweet Sixteen by Beth</title>
		<link>http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-572</link>
		<dc:creator>Beth</dc:creator>
		<pubDate>Wed, 07 Nov 2007 10:46:40 +0000</pubDate>
		<guid isPermaLink="false">http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-572</guid>
		<description>Thanks for the birthday wishes!

It seemed like Will was tiny forever and then overnight was this big kid!  :)

I miss his tiny days.</description>
		<content:encoded><![CDATA[<p>Thanks for the birthday wishes!</p>
<p>It seemed like Will was tiny forever and then overnight was this big kid!  <img src='http://s.wordpress.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
<p>I miss his tiny days.</p>
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		<title>Comment on Sweet Sixteen by Karen</title>
		<link>http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-571</link>
		<dc:creator>Karen</dc:creator>
		<pubDate>Wed, 07 Nov 2007 03:41:16 +0000</pubDate>
		<guid isPermaLink="false">http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-571</guid>
		<description>What a beautiful smile!  Happy Birthday, Will!  I bet my little guy will be as big as you in the blink of an eye.  I&#039;m glad it was a good day.</description>
		<content:encoded><![CDATA[<p>What a beautiful smile!  Happy Birthday, Will!  I bet my little guy will be as big as you in the blink of an eye.  I&#8217;m glad it was a good day.</p>
]]></content:encoded>
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		<title>Comment on Sweet Sixteen by Sandi</title>
		<link>http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-548</link>
		<dc:creator>Sandi</dc:creator>
		<pubDate>Mon, 29 Oct 2007 02:49:30 +0000</pubDate>
		<guid isPermaLink="false">http://bethsmiz.wordpress.com/2007/10/23/sweet-sixteen/#comment-548</guid>
		<description>Happy 16th Birthday Will!!  Wow Beth, were does the time go?  What a great picture of Will...love the big smile :-)  I love what you said, it&#039;s so true.  I&#039;ve noticed as Jess gets older I really don&#039;t dwell as much on what she&#039;s &quot;not&quot; doing...it&#039;s enough that she is safe and well and happy.</description>
		<content:encoded><![CDATA[<p>Happy 16th Birthday Will!!  Wow Beth, were does the time go?  What a great picture of Will&#8230;love the big smile <img src='http://s.wordpress.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' />   I love what you said, it&#8217;s so true.  I&#8217;ve noticed as Jess gets older I really don&#8217;t dwell as much on what she&#8217;s &#8220;not&#8221; doing&#8230;it&#8217;s enough that she is safe and well and happy.</p>
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		<title>Comment on TeamCdLS to Run the Chicago Marathon, Oct. 22, 2006 by Buy levitra</title>
		<link>http://bethsmiz.wordpress.com/2006/10/10/teamcdls-to-run-the-chicago-marathon-oct-22-2006/#comment-500</link>
		<dc:creator>Buy levitra</dc:creator>
		<pubDate>Thu, 27 Sep 2007 06:20:30 +0000</pubDate>
		<guid isPermaLink="false">http://bethsmiz.wordpress.com/2006/10/10/teamcdls-to-run-the-chicago-marathon-oct-22-2006/#comment-500</guid>
		<description>Hi 
 
What can I say?
 
 
&lt;a href=&quot;http://echo.gmu.edu/toolcenter-wiki/index.php?title=Buy_levitra&quot; rel=&quot;nofollow&quot;&gt;cialas vs levitra&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>Hi </p>
<p>What can I say?</p>
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]]></content:encoded>
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		<title>Comment on Family Photo by Sandi</title>
		<link>http://bethsmiz.wordpress.com/2007/01/14/family-photo/#comment-79</link>
		<dc:creator>Sandi</dc:creator>
		<pubDate>Tue, 06 Feb 2007 12:34:59 +0000</pubDate>
		<guid isPermaLink="false">http://bethsmiz.wordpress.com/2007/01/14/family-photo/#comment-79</guid>
		<description>Love the family photo Beth!  Your girls are just beautiful and Will is a handsome young man! :-)</description>
		<content:encoded><![CDATA[<p>Love the family photo Beth!  Your girls are just beautiful and Will is a handsome young man! <img src='http://s.wordpress.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> </p>
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